Chronic Fatigue Syndrome: Advancing Research and Clinical Education

8 thoughts on “Chronic Fatigue Syndrome: Advancing Research and Clinical Education”

1. More awareness is needed about this condition. I was hit by it twice. Both times I had a high stress load before the onset of cfs. The first time lasted for ~9 months, and the second one lasting for ~6 months. I was physically weak, could not concentrate and had a major reduction in my efficiency at work. I took many medical examinations first time I was experiencing it, and no one would understand what's wrong with me, untill the last doctor I saw give me the diagnosis, at which point I was recovering. The second time yhr onset of my sybdrom was accompanied by a major panic attack due to stress and a prolonged flew-like illness that proved to be difficult to go away. The only reason I could force myself to leave my place after one week was my major claustrophobia. Problems with sleeping and restlessness were also observed both times.
   I hope that the reason for cfs is understood soon and the cute is found.

2. AND BY THE WAY MY DEAR FRIENDS, THIS IS MORGELLONS. I have it. Have any strange hairs growing out of your skin? Put them under a microscope once.. I’ve had this for alot of years now.

3. When is Disability going to be available for us long term sufferers? I am single, can’t work, and have no family to support me. I have suffered for 25 years now.

4. 22 year old pre-med student here. After getting mono freshman year, my acute state degenerated into CFS. It's been hell but here I am 3 years later and my condition has almost completely resolved, likely due to the resilience of my youthful immune system, a privilege many CFS sufferers do not have. I have written a 28 page thesis on the pathogenesis of CFS based on a 2 year thorough meta analysis of all available research and it is awaiting publication. Hopefully it will help to educate the clinical community and instate actual clinical parameters using epigenetic diagnostic tools so that doctors can stop approaching CFS as a psychosomatic affect.

5. I would advise the CDC and doctors here to read the following web site to educate themselves about the disease and it's medical and scientific markers and it's diagnostics http://www.me-ireland.com

6. This is a very medical disease, not psychological. My son was straight A Stanford student 2 years ago, got ill with virus, triggered M.E. =Myalgic Encephalomyelitis, an internationally accepted disease ICD G93.3. Now he cannot talk, chew, listed or care for himself. He did not wish himself to get M.E., so Dr. Lapp and similar old timers need to stop promoting this myth esp for Severe M.E. and vast majority of others. The CDC and NIH need to use internationally accepted M.E. and stop making other vague terms that make this hard to study to find biomarkers, mechanisms, treatments, cures. NIH need much more funding to help 2 million neglected in US. Am thrilled that other organizational like Open Medicine have found private funding to make up for decades or gross neglect by NIH and CDC, and they have started Sever M.E. Biomarker study (see End-MECFS.org). Hope NIH can increase funding for M.E. as Dr. Francis Collins has promised, and fund both internal and external research, since NIH does not have all the answers, and at times, like last 3 decades, can have difficulty thinking outside their box. Good to see some movement incl Dr. Nath, but Lapp and Dr. Walitt are petrifying if they have outdated attitudes that this still psych disease, and not recognize realities like POTS, high urine output, low natural killer cells, abnormal Cytokines, low blood volumes, brain abnormalities, qEEG abnormalities (see work by Zinns), SPECT and MRI defects, many similarities and some differences vs MS (Great work in Australia!), Biome issues, viral triggers and other quantifiable physiological issues.

7. Looks very interesting! Hoping we get closer to finally cracking this.

8. Very much appreciated. Thank you.

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