Heather Lanier’s daughter Fiona has Wolf-Hirschhorn syndrome, a genetic condition that results in developmental delays — but that doesn’t make her tragic, angelic or any of the other stereotypes about kids like her. In this talk about the beautiful, complicated, joyful and hard journey of raising a rare girl, Lanier questions our assumptions about what makes a life “good” or “bad,” challenging us to stop fixating on solutions for whatever we deem not normal, and instead to take life as it comes.
The Engineering of Conscious Experience
AI, Art & Consciousness