The Royal Institution
As the use of at home DNA testing kits increases, what do we know about how they work, how accurate they are and how safe is your data.
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The use of home DNA testing kits is increasing. You can purchase cheaper accommodation based on your ancestry results and generate a ‘unique diet plan’ based on your genetics. Criminals from cases over thirty years ago are being caught because of a family member’s profile.
How did something only really seen on CSI become part of our daily lives? Should corporate companies really be using our biology for discounts? What do the DNA results actually show?
Debbie Kennett is a surname researcher and genetic genealogist. She is an Honorary Research Associate in the Department of Genetics, Evolution and Environment at UCL.
Aylwyn Scally is a researcher in human evolutionary genetics at the University of Cambridge. Originally trained in theoretical physics, he uses computational and mathematical methods with large-scale genetic data.
Sara Abdulla is the Chief Opinion Editor at Nature, London.
This talk was filmed in the Ri on 23 September 2019.
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70rd! 🙂
We're really sorry but we had a fault with one of the microphones at around 17:45. We working on improving the subtitles now!
I did one of those Ancestry D.N.A. kits once, but all I got back was a golden Crucifix older than dirt, a bottle of Holy water blessed by the Pope & a get well card from the Vatican…
your data is never safe. it goes in a gov database and can be stolen pretty much at anytime from these companies. don't take these stupid tests.
I have a question about these companies, do they ask for family history or ancestry information? Their database is built around people who submit DNA so they have very detailed info from western europe and america where most of their customers are from, but are much less accurate in pinpointing your ancestry if you are from asia or africa. Do they ask people for background information or is it a blind test? If it is a truly blind test, that's good in some ways, for example if I am black, my genes should be more frequent in sub-saharan africa than Russia (for example) and if my results come back listing sub-saharanafrica as my ancestry, then I know it's at least somewhat accurate.
But in some ways its bad, because if I am black and live in northern europe, then my gene frequency will be added to the northern europe pool and skew future results. How do they get around this problem?
With just 30 million on file thats only .4% of the 7.5 billion people on the planet! 70% of that is from the U.S and another 4 million from the UK. That's a tiny drop in the ocean of people and the majority of what they have is European. They would need everyones DNA on the planet or close to it for any accuracy in terms of ancestry.
Considering how they steal and sell our information online now. I refuse to give and then PAY so they can take the MOST IMPORTANT information, ME and upload that online so they can sell, profit or worse yet patent me/my info! They have already used that database for purposes other than what they solicited it for when they caught the criminals. So what if they protect against that now. The genies out, they weren't suppose to use our phones, texts, emails and social media to spy on is ethier and look how thats turned out.
Wait a minute – where is the table?
I have taken three different company's DNA tests with different results and two company's have updated the results with vastly different outcomes…one company said I had absolutely no chance of having a certain disease, but like I wrote back and informed them I already have been diagnosed twice in my life with that particular disease…these tests are not ready to be used professionally…use it only for general information…perhaps only glaring markers can be trusted at this point in time
Well…they sent the DNA of identical twins to different companies and got different results…so I say no.
How much can we trust these companies (and any one dealing with data) that there are respecting their terms of service ? Is there an European agency that track what these companies are doing ? How many inspectors have they ? What technical skills and tools do they have ? What is the risk that these database can be hacked or leaked ?
Once the data is out there I'm not sure anyone can guarantee that we don't lose control over it. How much does this matters ? For now maybe it is not so bad, but can we really assume that it will continue to be so as database merge and new ways of using this data emerge ?
In the end it all depends on how likely it is that our society will evolve into a full blown dystopia.
What they don't tell you, is that your information IS shared with law enforcement . and insurance companies .
666 views. Spooky.
Lady in the blue dress wants everyone in a forensic database?!?!?! Kiss liberty goodbye!!! Good lord where do you find these people!?!? People like these are terrifying.
If you use a DNA testing kit you can bet your bottom dollar that the results will be passed onto government agencies and insurance companies.
"Since you've done nothing wrong, whats there to worry about the government having your DNA information?"……wow, the questions these people ask. Scary!!
"Since I've done nothing wrong"….. And these are intellectuals!? Obviously they arent aware of soviet russia from the revolution forward. Millions of innocent people were thrown into gulags for arbitrary crimes, literally for "doing nothing wrong". This is history, fact. Not just my opinion.
I get the feeling that most dna test kits are race baiting, snake oil salesmen and private data thiefs.
In Africa and third world countries couldn't you introduce an economic incentive e.g. paying people to test their DNA rather than having them buy kits?
There is one very interesting fact about genetics that was not touched on.
Every existing human has 2 parents, who have two parents, who have two parents, etc. That is, with each generation of ancestor the number of ancestors double. This number grows rapidly as we go back in the generations.
On the other hand the total population of the world has been increasing in an historically known rate.
At some point in the past, depending on how you calculate the duration of each generation, the number of your ancestors exceeds the total population of the Earth.
This is compounded by the fact that not all people from the past contributed to your DNA.
This can only be explained by concluding that many individual ancestors have multiple places in your family tree.
This must alter the way this are calculated.
Can we have a comment from the two experts on the panel.
So you pay them for some nonsense data sheet, and they keep the good data and sell it to third parties. Sounds like a good deal.
A misleading title….
What if they ever invent a device that can make a reasonable facsimile or picture of your face, or heavens, even copy your fingerprints?! Shudders! – j q t –
Interesting. Spending your life poking your nose into other people’s lives
Em.
How many of the DNA testing companies are owned by controversial parent companies, Ie. Huntingdon Life Sciences or maybe insurance companies?
It’s one massive can of worms that can bring about distress and conflict.
I was hoping to learn how accurate the sequencing is. If a test finds that I have ApoE4 or some other gene, is that 100% certain?
I can find no evidence that Amazon will not deliver to certain zip codes. Is the moderator just spewing nonsense?
RI how about a video about how DNA can be manufactured and replicated.
I don't get her point around 39:00. ??? Taking DNA samples of Native American populations doesn't help them to do the research that they want to do? This is just confusing, what is she talking about?
Is she saying something like you shouldn't increase the amount of reference data in the database because by doing so you're not helping a group do some different research? Can anyone help me out here? It doesn't make any sense.
They should be paying us for our information. Companies have been getting rich from our data that we give for free or even pay them…..
Africa is not where northern European people come from…
Examples of paternity fraud.
Audience laughing.
Yup, the World is still insane.
Eowin? Did she have nerdy parents who named her after the horse lady form LOTR? Or is it still used as a given name? I though it went extinct 100 years ago.
25 Million is only 0. 3% of the total population